Misinformation

The last several days have been challenging for Nonnie. She continues to have bleeding and bruising because of her low platelet levels. Physically, she feels very weak and tired from all of the medications. Dr. Paquette told her today that the only thing she needs to worry about is eating and trying to get some exercise. Unfortunately, she is having a difficult time doing both.

The information I gave regarding her starting a clinical trial drug this week was incorrect. That would only be a "last resort" treatment and any clinical trial therapy would eliminate Nonnie from a transplant in the future. Last night, she started a chemotherapy treatment called Decitabine. The medication is given every 8 hours for 3 days, each treatment lasting 3 hours. The results this morning already show improvement in the "blasts" meaning that it appears to be working.